Gifts by 12-31-2018 will be matched dollar-for-dollar thanks to generous donors!!! (Up to $10,000)
We need your help to support families facing NBIA disorders.
Together we are mighty, and can ensure that the NBIA Disorders Association can continue its work as long as families need its support. With your help, we are a beacon of hope!!
Here’s what you can do:
Help bring awareness to NBIA disorders and the challenges facing our families.
It’s easy. Just create a personal fundraising page by clicking on the blue Fundraise button below. Share your story and say why this is important to you and your family. Add some photos too. Set your own fundraising goal, whether it is $20, $200 or $2,000 or more. Choose any amount and just know: Every dollar makes a difference!
And don’t forget to promote your page on Facebook and Twitter.
Don’t want to set up a page? How about hosting a picnic or another event to raise funds?
Only have time to send an email or two to family and friends? No problem. Tell them you need their help. Ask them to share your message with their friends and family or create their own page to raise awareness. Or they can donate directly by clicking Providing Hope Family Support 2018.
Please consider joining with others to help families on the NBIA journey.
Know that your contributions are tax-deductible to the full extent allowed by law because we are a charitable, 501(c)(3) organization.
Neurodegeneration with Brain Iron Accumulation is a group of rare, genetic neurological disorders characterized by abnormal accumulation of iron in the basal ganglia. The basal ganglia is a collection of structures deep within the base of the brain that assist in regulating movements.
In our drive to find a cure for NBIA, we provide support to families, educate the public and accelerate research with collaborators from around the world.