Providing Hope Family Support

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Providing Hope - Supporting Families!

Every day, as the mother of a child with NBIA, I think about all the other families facing the realities of these disorders. I, too, walked the long and stressful journey for answers. My family and I were devastated when my daughter Dylan was diagnosed with NBIA. Our medical team had little knowledge about the disease.

When I found NBIA Disorders Association, everything changed.

We came away armed with information and comforted to know others were already fighting the battle we were just beginning.

NBIA is rare but families never have to face it alone.

We also learned that, in addition to raising funds for research, we needed to support our families as they navigated the challenging path of dealing with an ultra-rare disease that as yet, no cure.

Please join us in supporting families near and far as they come to grips with their new reality. Your gift to the Patricia and Kimberly Wood Fund as part of the Providing Hope campaign can make all the difference.

Meg Talley Dyer, Board of Trustees Chair
NBIA Disorders Association

P.S. To learn more about our family's story, check out the video we made for the 2017 family conference.

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The Patricia and Kimberly Wood Fund

Patricia Wood founded the NBIA Disorders Association in 1996 to support families like hers dealing with NBIA. Her daughter Kimberly was diagnosed at age three, and at that time little was known. Ms. Wood continues to serve as President, and at the 20th Anniversary of the organization the Patricia and Kimberly Wood Fund for family support was established in their honor.

From the first possibility of diagnosis to navigating a family's new realities of finding medical care, taking part in research trials and daily caregiving, the NBIA Disorders Association is here for families.

Knowing how important it is to connect with others, the organization provides conferences, a website, newsletters, and other methods to keep families updated on the latest medical guidance and research information.

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760-591-9455 | Contact Email

Thank you! Your gift has been received.

We appreciate your generous gift for family support. It will be put to work immediately to create lasting change.

We will keep you updated via our newsletters, emails, and our website at http://www.NBIAdisorders.org .

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Address Line 1 | City, State Zip Code
Cell Phone | Contact Email