Help us with our largest conference ever!
May 30 - June 2, 2019
Charleston, South Carolina
We need your help to make our Family Conference a success.
As the largest worldwide gathering of those with ultra-rare NBIA disorders, the conference is an opportunity for families to forge lifelong ties with one another while hearing directly from researchers about efforts to learn more about these devastating disorders and how they might one day be cured.
We will have seminars on various topics relevant to the disorders, including those by members of our Scientific & Medical Advisory Board. NBIA families will have the opportunity to meet one-on-one or in groups with the experts, who will provide medical counseling and insights about the disorders with attendees.
HERE’S HOW YOU CAN HELP. We’re asking you to please consider joining with others to sponsor this conference. We have families from around the world who wish to come, but to keep costs low so that as many people as possible can attend, we need to subsidize conference costs with the help of sponsors. We will have a printed program listing our sponsors, information tables where sponsors can display information and materials, along with various other ways to thank those who have so generously answered our call.
Please know that your contributions are tax-deductible to the full extent allowed by law because we are a charitable, 501(c)(3) organization.
We greatly appreciate your consideration. Don’t hesitate to call me at 619-588-2315 if you have questions about sponsorships of any size.
Patricia V. Wood
Neurodegeneration with Brain Iron Accumulation is a group of rare, genetic neurological disorders characterized by abnormal accumulation of iron in the basal ganglia. The basal ganglia is a collection of structures deep within the base of the brain that assist in regulating movements.