Give by 12/31/2018 and your donation will be matched dollar for dollar (up to $10,000.)
Every day, as the mother of a child with NBIA, I think about all the other families facing the realities of these disorders. I, too, walked the long and stressful journey for answers. My family and I were devastated when my daughter Dylan was diagnosed with NBIA. Our medical team had little knowledge about the disease.
When I found NBIA Disorders Association, everything changed.
We came away armed with information and comforted to know others were already fighting the battle we were just beginning.
NBIA is rare but families never have to face it alone.
We also learned that, in addition to raising funds for research, we needed to support our families as they navigated the challenging path of dealing with an ultra-rare disease that as yet, no cure.
Please join us in supporting families near and far as they come to grips with their new reality. Your gift to the Patricia and Kimberly Wood Fund as part of the Providing Hope campaign can make all the difference.
Meg Talley Dyer, Board of Trustees Chair
NBIA Disorders Association
P.S. To learn more about our family's story, check out the video we made for the 2017 family conference.
We appreciate your generous gift for family support. It will be put to work immediately to create lasting change.
We will keep you updated via our newsletters, emails, and our website at http://www.NBIAdisorders.org .