We welcome all donors to our Beacon of Hope campaign in support of families. Those who make a monthly commitment are Partners in Hope, and we invite you to join us by giving in this special way.
Partners in Hope help us support families. From the first possibility of diagnosis to navigating a family’s new realities of finding medical care, taking part in research trials and daily caregiving, the NBIA Disorders Association is here for them. We offer support through our family conferences, newsletters, website, networking programs, and Facebook groups, along with maintaining our database of affected individuals and their families.
All of these programs and services require consistent funding to keep afloat, and your monthly donation can provide stability and consistency as we plan for future events.
Recently, I realized my gym membership had gone unused for months. I hadn't missed the money, but I hadn't gotten any benefit from it, either. I've decided that I can increase my monthly donation, drop the gym membership and dust off my bike when I can actually fit in some exercise. I'm sure it will be different for you. But I am now more satisfied that my money is going to a much better cause. Hopefully, you will find your own reasons to be a Partner in Hope.
Matthew Ritzman, Board of Trustees Chair
NBIA Disorders Association
We appreciate your gift, making you a Partner in Hope for NBIA Disorders Association.
We will put your gift to work immediately to help families facing an NBIA disorder.
We will keep you updated via our newsletters, emails, and our website. If you have any questions or concerns, please contact us.
President, NBIA Disorders Association