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While we tirelessly fund research to discover treatments and cures for NBIA disorders, we recognize that dedicated support for our families is equally essential. This support represents a critical piece of the puzzle for those eagerly awaiting the day when treatment will alleviate the suffering of their loved ones affected by NBIA. Your contribution to the "Patricia and Kimberly Wood Family Support Fund" helps us turn this vision into reality and brings hope to countless families on their NBIA journey. Thank you for your steadfast commitment to making a meaningful difference in the lives of those affected by NBIA disorders.
Our Inspiration
Patricia Wood, the founder of the NBIA Disorders Association in 1996, has made it her mission to support families affected by NBIA disorders. Her steadfast commitment, boundless compassion, and tireless efforts have touched the lives of countless individuals and families who have faced the challenges of this rare condition. Patricia's leadership and vision have been instrumental in advancing our understanding of NBIA disorders and providing vital support and resources to affected families.
She states, "One of my goals from the start was to build a strong community so that we could emotionally support and learn from each other and find happiness and friendship as part of our journey in searching for treatments and cures for all our NBIA individuals."
The NBIA Disorders Association created the "Patricia and Kimberly Wood Family Support Fund" to commemorate the organization's 20th Anniversary. This fund is a touching tribute to Patricia and her daughter, Kimberly Wood. Kimberly's courageous battle with idiopathic NBIA has deeply inspired Patricia and played an integral role in shaping her dedication and journey.
Founder Patricia Wood and her daughter Kimberly, who has idiopathic NBIA.
Patricia served as NBIA Disorders Association President from 1996 - 2023.
When you contribute to the "Patricia and Kimberly Wood Family Support Fund," you demonstrate your commitment to assisting families at every stage of their journey with NBIA. This dedicated support takes various forms to empower families and strengthen our community.
Our robust website is a trusted resource hub, providing families with the most accurate and up-to-date information on all NBIA disorders. Additionally, we produce informative newsletters, delivering vital research updates and highlighting community events, ensuring families stay informed and connected.
Through your generosity, we host educational webinars and virtual family meetups, fostering an environment of learning, support, and camaraderie. Your donations also enable us to create updated flyers and educational materials, empowering our families to raise awareness and educate their communities about NBIA disorders.
The "Patricia and Kimberly Wood Family Support Fund" is integral in planning and executing our unforgettable International Family Conferences, held biennially since 2000. These gatherings are a cornerstone of our mission, offering families a chance to connect, learn, and find hope. The NBIA Disorders Association International Family Conferences are vital for newly diagnosed families, nurturing enduring friendships and bringing the entire NBIA community together, including researchers and clinicians. This collaborative environment keeps everyone inspired and focused on NBIA disorders, facilitating mutual learning and support for families in countless ways.
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Get in touch! info@NBIAdisorders.org or 619-588-2315
Patricia and Kimberly Wood Fund for Family Support
Patricia and Kimberly Wood Fund for Family Support
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Patricia and Kimberly Wood Fund for Family Support
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