Make a one-time donation or become a Partner in Hope
by making a monthly gift.
Gifts of all sizes make a profound impact on our ability to fulfill our mission of supporting families, funding research, and collaborating with others around the world that work to treat and cure all NBIA Disorders.
Partners in Hope help us support families. From the first possibility of diagnosis to navigating a family’s new realities of finding medical care, taking part in research trials and daily caregiving, the NBIA Disorders Association is here for them. We offer support through our family conferences, newsletters, website, networking programs, and Facebook groups, along with maintaining our database of affected individuals and their families.
All of these programs and services require consistent funding to keep afloat, and your monthly donation can provide stability and consistency as we plan for future events.
We will put your gift to work immediately to help families facing an NBIA disorder.
We will keep you updated via our newsletters, emails, and our website. If you have any questions or concerns, please contact us.
President, NBIA Disorders Association