The NBIA Disorders Association will host its 13th International Family Conference from May 28 to June 1, 2025, in Greenville, SC. Our family conference is the most significant contributor to our mission's family support and education pillars. We need your help to make it a success.
As the largest worldwide gathering of individuals living with ultra-rare Neurodegeneration with Brain Iron Accumulation (NBIA) disorders, the conference is an opportunity for families to forge lifelong bonds with one another. The conference experience provides an unmatched level of support for our community, giving our families the chance to learn alongside those traveling the same journey.
With your generous sponsorship, we will be able to offer seminars relevant to NBIA disorders, including those by our Scientific & Medical Advisory Board members. NBIA families will have the opportunity to meet with NBIA experts, who will provide clinical information and best practices about the disorders with attendees.
Our conference weekend also includes invitations to esteemed researchers in the NBIA field who are actively involved in uncovering disease mechanisms and working to explore and develop therapeutics. This provides a platform for our families to learn about the progress being made toward treatment options for their loved ones.
Additionally, your sponsorship allows us to offer unique learning opportunities to educate physicians interested in NBIA disorders, expanding our network. Interacting with families and learning directly from clinical experts provides a distinctive educational experience unable to be replicated in a traditional environment.
By partnering with us as a conference sponsor, you'll help us deliver an exceptional conference experience while ensuring that registration fees remain affordable, enabling more families to participate. Attached, you'll find detailed sponsorship options, offering various levels of engagement. We warmly invite you to join us as a sponsor and experience firsthand the vibrancy of our community during the conference.
Rest assured, your contributions are tax-deductible within the limits permitted by law, as we are a recognized 501(c)(3) charitable organization.
Your thoughtful consideration means the world to us.
Sincerely,
Amber Denton
President
